Published June 6, 2025 | Version v1
Journal Open

Advancing Healthcare Consent Management: The PAROMA-MED Platform's Integration of User-Centered Interfaces, FHIR, and the EU Data Space Connector

  • 1. ROR icon Agentscape (Germany)
  • 2. Qualtek
  • 3. Eurescom GmbH
  • 4. Ericsson Telecomunicazioni
  • 5. ROR icon Ubitech (Greece)

Description

The increasing complexity of healthcare data management requires advanced solutions to ensure privacy, security, and regulatory compliance. Consent management, in particular, is a critical component of patient-centered care in the digital age, as patients need complete control over how their sensitive health information is accessed and used. This paper presents the PAROMA-MED platform, which introduces a user-centric consent management framework designed to improve transparency
and trust in healthcare data exchanges. By integrating technologies such as the Fast Healthcare Interoperability Resources (FHIR)
standard, the EU Data Space Connector, and an intuitive user interface, PAROMA-MED empowers patients to control their health data. We explore the technical and user interaction aspects of the platform, highlighting how it addresses the challenges of consent management while ensuring regulatory compliance with GDPR. This paper discusses the implications of these technologies for improving healthcare delivery and fostering patient engagement.

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Additional details

Funding

European Commission
PAROMA-MED – Privacy Aware and Privacy Preserving Distributed and Robust Machine Learning for Medical Applications 101070222