Barriers and facilitators to implementation of the interoperable Survivorship Passport (SurPass) v2.0 in 6 European countries: a PanCareSurPass online survey study
Creators
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van den Oever, Selina
(Contact person)1
- de Beijer, Ismay (Researcher)1
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Kremer, Leontien
(Work package leader)2, 3
- Alfes, Marie (Researcher)4
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Balaguer, Julia
(Researcher)5
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Bardi, Edit
(Researcher)6
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Cañete, Adela
(Researcher)5
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Cangioli, Giorgio
(Researcher)7
- Charalambous, Eliana (Researcher)7
- Chronaki, Catherine (Work package leader)7
- Costa, Tiago (Researcher)4
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Degelsegger-Márquez, Alexander
(Work package leader)8
- Düster, Vanessa (Researcher)9
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Filbert, Anna-Liesa
(Researcher)10
- Grabow, Desiree (Project leader)11
- Gredinger, Gerald (Researcher)8
- Gsell, Hannah (Researcher)12
- Haupt, Riccardo (Work package leader)13
- can Helvoirt, Maria (Researcher)14
- Ladenstein, Ruth (Work package leader)9
- Langer, Thorsten (Researcher)15
- Laschkolnig, Anja (Researcher)16
- Muraca, Monica (Researcher)13
- Rascon, Jelena (Researcher)17
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Schreier, Guenter
(Researcher)18
- Tomasikova, Zuzana (Researcher)
- Tormo, Maria Teresa (Researcher)5
- Trinkunas, Justas (Researcher)17
- Trollip, Jessica (Researcher)1
- Trunner, Kathrin (Researcher)8
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Uyttebroeck, Anne
(Researcher)14
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van der Pal, Helena J
(Researcher)1
- Pluijm, Saskia (Researcher)1
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1.
Princess Máxima Center
- 2. Prinses Máxima Centrum voor Kinderoncologie
- 3. Emma Kinderziekenhuis Amsterdam UMC
- 4. Childhood Cancer International Europe
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5.
Fundacion Para La Investigacion Del Hospital Universitario La Fe De La Comunidad Valenciana
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6.
St Anna Children's Hospital
- 7. HL7 Europe
-
8.
Gesundheit Österreich
- 9. St. Anna Kinderkrebsforschung
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10.
Translationale Onkologie an der Universitätsmedizin der Johannes Gutenberg-Universität Mainz
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11.
University Medical Center of the Johannes Gutenberg University Mainz
- 12. Childhood Cancer International
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13.
Istituto Giannina Gaslini
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14.
KU Leuven
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15.
University of Lübeck
- 16. Gesundheit Österreich GMBH
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17.
Vilnius University Hospital Santariskiu Klinikos
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18.
Austrian Institute of Technology
Description
PURPOSE Long-term follow-up (LTFU) care for childhood cancer survivors (CCSs) is essential to improve and maintain their quality of life. The Survivorship Passport (SurPass) is a digital tool which can aid in the delivery of adequate LTFU care. During the European PanCareSurPass (PCSP) project, the SurPass v2.0 will be implemented and evaluated at six LTFU care clinics in Austria, Belgium, Germany, Italy, Lithuania and Spain. We aimed to identify barriers and facilitators to the implementation of the SurPass v2.0 with regard to the care process as well as ethical, legal, social, and economical aspects.
METHODS An online, semi-structured survey was distributed to 75 stakeholders (LTFU care providers, LTFU care program managers and CCSs) affiliated with one of the six centres. Barriers and facilitators identified in four centres or more were defined as main contextual factors influencing implementation of SurPass v2.0.
RESULTS 54 barriers and 50 facilitators were identified. Among main barriers were a lack of time and (financial) resources, gaps in knowledge concerning ethical and legal issues and a potential increase in health-related anxiety in CCSs upon receiving a SurPass. Main facilitators included institutions’ access to electronic medical records, as well as previous experience with SurPass or similar tools.
CONCLUSIONS We provided an overview of contextual factors that may influence SurPass implementation. Solutions should be found to overcome barriers and ensure effective implementation of SurPass v2.0 into routine clinical care.
IMPLICATIONS FOR CANCER SURVIVORS These findings will be used to inform on an implementation strategy tailored for the six centres.
Files
PCSP WP1 Care + ELSE online survey manuscript_final.pdf
Files
(1.8 MB)
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Additional details
Funding
Dates
- Available
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2024-02