Social cognition and adjustment in adult survivors of pediatric central nervous system tumors

This is a dataset corresponding to data utilized in the publication titled "Social cognition and adjustment in adult survivors of pediatric central nervous system tumors" reported in Papini et al., 2023 (DOI: 10.1002/cncr.34889).

The file contains:

• demographic variables: sex and age at assessment (in years)
• clinical variables: clinical group, age at diagnosis (in years), time since diagnosis (in years), intelligence score (in standard score), tumor location, dose of cranial radiation (in Gy), chemotherapy agents (yes/no) and doses (in mg/m²), neurosurgery type, diagnosis, and presence of stoke, seizure and hearing loss
• functional outcomes: independent living, marital status, education, and employment
• social cognition measures (in scaled scores): Social Perception, Affect Naming, Prosody, Prosody Pair Matching, Faces Immediate, Faces Delayed, Faces Content, Faces Spatial, Names Immediate, Names Delayed, Proper Names, Activity
• social adjustment measures (in T-scores): Companionship, Instrumental Support, Emotional Support, Informational Support, Social Isolation, Ability to Participate in Social Roles and Activities, and Satisfaction with Social Roles and Activities
• neurocognitive functioning measures: executive function impairment (yes/no), non-verbal reasoning impairment (yes/no) and the BRIEF Global Executive Composite score (in T-score)

Please note that the time variables (i.e., age at assessment, age at diagnosis, and time since diagnosis) were rounded to whole years to ensure deidentification for sharing purposes.

Please cite the appropriate publications (this repository and corresponding publication above) in any communications or publications arising directly or indirectly from these data. 

Funding

The study was supported by National Cancer Institute (U01 CA195547, Hudson and Ness) and St. Baldrick’s Foundation (Research Scholar Award, Brinkman). Support to St Jude Children’s Research Hospital was also provided by the National Cancer Institute Cancer Center Support Grant (CORE) Grant (P30 CA21765, Roberts) and the American Lebanese Syrian Associated Charities.