Report on consumer receipts data and sample-derived data in exposome research. Public deliverable 2.2

The scope of this paper is on exposome research in the context of the
right to health and how the results of exposome research can contribute
to a just society while, at the same time, the methods by which exposome
research is performed adhere to applicable legal and ethical standards.
Section 2 outlines exposome research as an approach to health research
that aims to move away from approaches which focus on isolating and
assessing singular exposures or risk factors, instead taking an integrated
approach to the assessment and impact of exposures in their totality and
full complexity.
Section 3 defines health and dissects this definition in the right to health
care and the right to health protection, the latter being public health.
Section 3 further goes on to distinguish public health from the more
individually focused 'medicine'. Exposome research is ultimately focused
on public health.
Section 4 outlines the context in which exposome research is placed within
the confines of this paper, namely how the objectives of exposome
research can contribute to a just society. Section 4.3 gives an overview of
the themes and issues that play a role in the ethically and legally
compliant methods of exposome research.
Section 5 then gives concrete recommendations on the methods of
exposome research and how these should foster trust and enhance
participant engagement.
Section 6 focuses on a consumer cohort as a concrete example of
exposome research and looks at how the ethical and legal challenges were
dealt with in this particular use case. The authors also give
recommendations on how participant engagement as it is described in the
paper could in the future be enhanced in this consumer cohort.