Dataset for "Cognitive behavioural therapy self-help intervention preferences among informal caregivers of adults with chronic kidney disease: an online cross-sectional survey"
Creators
- 1. Healthcare Sciences and e-Health, Department of Women's and Children's Health, Uppsala, Sweden University , and Clinical Education, Development and Research (CEDAR), Psychology, University of Exeter, Exeter, United Kingdom
- 2. Clinical Education, Development and Research (CEDAR), Psychology, University of Exeter, Exeter, United Kingdom
- 3. University of Exeter Medical School, Faculty of Health and Life Sciences, University of Exeter, Exeter, United Kingdom , and Exeter Kidney Unit, Royal Devon University Healthcare NHS Foundation Trust, Exeter, United Kingdom
- 4. Healthcare Sciences and e-Health, Department of Women's and Children's Health, Uppsala, Sweden University
- 5. Department of Health Psychology, University Medical Center Groningen, University of Groningen, Groningen, the Netherlands
Description
Data and R code used for the analysis of data for the publication: Coumoundouros et al., Cognitive behavioural therapy self-help intervention preferences among informal caregivers of adults with chronic kidney disease: an online cross-sectional survey. BMC Nephrology
Summary of study
An online cross-sectional survey for informal caregivers (e.g. family and friends) of people living with chronic kidney disease in the United Kingdom. Study aimed to examine informal caregivers' cognitive behavioural therapy self-help intervention preferences, and describe the caregiving situation (e.g. types of care activities) and informal caregiver's mental health (depression, anxiety and stress symptoms).
Participants were eligible to participate if they were at least 18 years old, lived in the United Kingdom, and provided unpaid care to someone living with chronic kidney disease who was at least 18 years old.
The online survey included questions regarding (1) informal caregiver's characteristics; (2) care recipient's characteristics; (3) intervention preferences (e.g. content, delivery format); and (4) informal caregiver's mental health. Informal caregiver's mental health was assessed using the 21 item Depression, Anxiety, and Stress Scale (DASS-21), which is composed of three subscales measuring depression, anxiety, and stress, respectively.
Sixty-five individuals participated in the survey.
See the published article for full study details.
Description of uploaded files
1. ENTWINE_ESR14_Kidney Carer Survey Data_FULL_2022-08-30: Excel file with the complete, raw survey data. Note: the first half of participant's postal codes was collected, however this data was removed from the uploaded dataset to ensure participant anonymity.
2. ENTWINE_ESR14_Kidney Carer Survey Data_Clean DASS-21 Data_2022-08-30: Excel file with cleaned data for the DASS-21 scale. Data cleaning involved imputation of missing data if participants were missing data for one item within a subscale of the DASS-21. Missing values were imputed by finding the mean of all other items within the relevant subscale.
3. ENTWINE_ESR14_Kidney Carer Survey_KEY_2022-08-30: Excel file with key linking item labels in uploaded datasets with the corresponding survey question.
4. R Code for Kidney Carer Survey_2022-08-30: R file of R code used to analyse survey data.
5. R code for Kidney Carer Survey_PDF_2022-08-30: PDF file of R code used to analyse survey data.
Notes
Files
R code for Kidney Carer Survey_PDF_2022-08-30.pdf
Files
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Additional details
Related works
- Is cited by
- Journal article: 10.1186/s12882-022-03052-7 (DOI)