Published February 23, 2022
| Version v2
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Dataset from: Reporting of patient involvement: A mixed-methods analysis of current practice in health research publications
Creators
- 1. Berlin Institute of Health at Charité – Universitätsmedizin Berlin, QUEST Center for Responsible Research, Charitéplatz 1, 10117 Berlin, Germany
Description
This record includes the data associated with the study "Reporting of patient involvement: A mixed-methods analysis of current practice in health research publications". In this study, we evaluated the extent and quality of patient involvement reporting in examples of current practice in health research. We used a targeted search strategy to identify publications that report on patient involvement using the following three samples:
- Publications published in 2019 in The BMJ, which requires reporting on patient involvement in research articles
- Publications listed in the PCORI database. We filtered for topic: example of engagement in health research; stakeholder involvement: patients; year: 2019
- Publications citing the GRIPP2 reporting checklist or a critical appraisal guideline to assess the quality and impact of user involvement in research
After applying our inclusion and exclusion criteria, the final sample consisted of 87 publications that reported on patient involvement. Included publications were coded according to three coding schemes.
This deposit includes the following:
- Overview of publications that did not meet our inclusion criteria across all 3 samples (BMJ, PCORI, and citation)
- Overview of publications and additional documents (if applicable) that met our inclusion criteria across all 3 samples (BMJ, PCORI, and citation)
- Coded segments and analysis for the coding scheme "Phase of involvement" across all 3 samples (BMJ, PCORI, and citation). This includes the count of each sub-code across publications and the final results table.
- Coded segments and analysis for the coding scheme "GRIPP2-SF reporting guidelines according to Staniszewska et al., 2017" across all 3 samples (BMJ, PCORI, and citation). This includes the count of each sub-code across publications and the final results table.
- Coded segments and analysis for the coding scheme "Critical appraisal tool according to Wright et al., (2010)" across all 3 samples (BMJ, PCORI, and citation). This includes the count of each sub-code across publications and the final results table.
Notes
The study is funded by intramural funds of the QUEST Center for Responsible Research, Berlin Institute of Health, Charité - Universitätsmedizin Berlin
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Related works
- Is supplement to
- Other: 10.17605/OSF.IO/VNTGU (DOI)
References
- Staniszewska, S., Brett, J., Simera, I., Seers, K., Mockford, C., Goodlad, S., Altman, D. G., Moher, D., Barber, R., Denegri, S., Entwistle, A., Littlejohns, P., Morris, C., Suleman, R., Thomas, V., & Tysall, C. (2017). GRIPP2 reporting checklists: Tools to improve reporting of patient and public involvement in research. BMJ, 358. https://doi.org/10.1136/bmj.j3453
- Staniszewska, S., Brett, J., Simera, I., Seers, K., Mockford, C., Goodlad, S., Altman, D. G., Moher, D., Barber, R., Denegri, S., Entwistle, A., Littlejohns, P., Morris, C., Suleman, R., Thomas, V., & Tysall, C. (2017). GRIPP2 reporting checklists: Tools to improve reporting of patient and public involvement in research. Research Involvement and Engagement, 3(1), 13. https://doi.org/10.1186/s40900-017-0062-2
- Wright, D., Foster, C., Amir, Z., Elliott, J., & Wilson, R. (2010). Critical appraisal guidelines for assessing the quality and impact of user involvement in research. Health Expectations, 13(4), 359–368. https://doi.org/10.1111/j.1369-7625.2010.00607.x