Crowdsourcing Long COVID Sweden (CiLC-S): Exploring Digital Methods and Voluntary Health Data for Research and Response in Social Crises

We describe in this extended abstract the emergent, multi-disciplinary research project CiLC-S – Crowdsourcing Long COVID Sweden. The information science related part of the project aims to explore i) information needs and strategies of persons afflicted by long term health problems after a COVID-19 infection, and ii) alternative digital methods for inclusive, safe and efficient data collection for research and social response in the COVID-19 pandemic. The purpose of this presentation is to introduce the project and share some early ethical and methodological experiences as a foundation for discussions of current and future possibilities for information science research to respond to individual and societal information needs in the COVID-19 pandemic and similar large-scale social crises through innovative research questions and data collection methods.