STRONG-AYA: Improving the future of adolescents and young adults with cancer

Part of EU Open Research Repository
Published October 24, 2024 | Version v1
Project deliverable Open

D2.6 - First report on stakeholder engagement focused on patient-centered and patient-informed ethical guidance

Authors/Creators

  • 1. ROR icon Maastricht University
  • 2. Youth Cancer Europe
  • 3. European Cancer Organisation (ECO)
  • 4. ROR icon University of Leeds

Description

This report provides a targeted literature review of patient involvement practices and patient involvement evaluation practices focused on the field of AYA cancer research. The report ends with recommendations for improving evaluation frameworks for patient involvement in the context of research projects such as STRONG AYA.

Files

D2.6_STAKEHOLDER_ENGAGEMENT_PATIENT-CENTRED_ETHICAL_GUIDANCE-REPORT_1_STRONGAYA_v.1.pdf

Files (4.4 MB)

Additional details

Funding

European Commission
STRONG-AYA - THE STRONG-AYA INITIATIVE: IMPROVING THE FUTURE OF YOUNG ADULTS WITH CANCER 101057482