Published February 19, 2025 | Version v1
Report Open

Evidence on health inequities experienced by the rare disease community with regards to receipt of a diagnosis and access to health and social care services: a scoping review

  • 1. ROR icon University of Exeter
  • 1. ROR icon University of Exeter
  • 2. University College London Social Science Research Unit
  • 3. University of Exeter Medical School

Description

This report is a scoping review of evidence of inequities experienced by the rare disease community with regards to receipt of a diagnosis and access to health and social care services. The report was produced by the Exeter PRP Evidence Review Facility. The report was funded by the UK National Institute for Health and Care Research (NIHR) Policy Research Programme (NIHR200695 - Evidence review facility to support national policy development and evaluation). The views expressed are those of the authors and not necessarily those of the NIHR or the Department of Health and Social Care.

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Rare diseases report FINAL February 2025.pdf

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