Published November 14, 2024 | Version v1
Project deliverable Open

D12.2 Citizen and Patient Perspectives on Oncogenomic Data Reuse

Contributors

Work package leaders:

  • 1. Luxembourg National Data Service

Description

This deliverable formulates ethical recommendations for a trustworthy framework for genomic data reuse in oncology based on the perspectives of patients, citizens, and Can.Heal professionals. It highlights areas where the values of the general public and professionals align, yet also where they might differ, indicating ethical points of discussion to be considered in the EU Cancer and Health Genomics Platform. The recommendations are addressed to any expert in oncogenomics, as well as EU and national health policymakers.

Files

D12.2 Citizen and Patient Perspectives on Oncogenomic Data Reuse.pdf

Files (2.4 MB)

Additional details

Funding

European Commission
EU4Health Programme 101080009