A Novel Globally Applicable Research Toolkit for Children with Lower Limb Loss - Prosthetic User Needs, Quality of Life, Pain and Physical Function

This toolkit is for researchers working with children with lower limb loss or the relevant stakeholders (parent and/or clinical prosthetist). The toolkit can be used to identify the unique prosthetic user needs and overall wellbeing for children with lower limb loss. The development process and protocol for delivery in 3 locations is detailed in the PLOS One publication at DOI: https://doi.org/10.1371/journal.pone.0310848 . The development involved extensive user input and validation.

The toolkit spans 4 domains of outcome measures: prosthetic user requirements, pain and physical health, quality of life and physical function. Please open the figure named 'Toolkit Summary' for clarity. It incorporates interactive interview guides for children aged 5-17yrs which were designed for easy use in different environmental settings, cultures and socioeconomic locations. Different versions for the age of child have been developed (5-9yrs and 10-17yrs). These are complemented with interviews for parents and for treating prosthetists to provide a comprehensive overview of the challenges faced by this cohort. Additional outcome measures include the PedsQL pain and quality of life questionnaires, the socket comfort score, a prosthetist clinical evaluation sheet and a modified version of the amputee mobility predictor. PedsQL outcome measures and the clinical evaluation sheets are provided for each amputation level. 

In the folder attached please find 3 versions of the toolkit for differing environments of use and language: 

1. Low Resourced Environment - provided in Khmer (Cambodia)
2. Low Resourced Environment - provided in English
3. High Resourced Environment - provided in English. 

Within each folder you will find an image which accurately displays the full toolkit - this should be opened first for understanding. The rest of the folders should be self explanatory with sections for child, parent and prosthetist. Where necessary, different versions are provided for age of child or amputation level. 

If there are any questions regarding use, please do not hesitate to contact one of the two researchers below who would be more than happy to help. 

Caitlin Edgar - caitlin.edgar17@imperial.ac.uk

Claudia Ghidini - claudia.ghidini20@imperial.ac.uk