GHGA
Published September 28, 2023 | Version v2
Project milestone Open

The Legal and Data Protection Concept for the Operation of the German Human Genome-Phenome Archive (GHGA)

Creators

  • 1. German Human Genome-Phenome Archive (GHGA, W620), German Cancer Research Center (DKFZ), Heidelberg, Germany, and Faculty of Law, BioQuant Centre, Heidelberg University, Heidelberg
  • 2. German Human Genome-Phenome Archive (GHGA, W620), German Cancer Research Center (DKFZ), Heidelberg, Germany
  • 3. Applied Bioinformatics, Department of Computer Science, University of Tübingen, Tübingen, Germany and Institute for Bioinformatics and Medical Informatics, University of Tübingen, Tübingen, Germany and Institute for Translational Bioinformatics, University Hospital Tübingen, Tübingen, Germany
  • 4. High Performance and Cloud Computing Group and Applied Bioinformatics, Eberhard Karls Universität Tübingen, Tübingen, Germany
  • 5. Faculty of Law, BioQuant Centre, Heidelberg University, Heidelberg
  • 6. Legal Department (M280), German Cancer Research Center (DKFZ), Heidelberg, Germany
  • 7. Applied Bioinformatics, Department of Computer Science, University of Tübingen, Tübingen, Germany
  • 8. Division of Computational Genomics and Systems Genetics, German Cancer Research Center (DKFZ), Heidelberg, Germany and European Molecular Biology Laboratory (EMBL), Heidelberg, Germany
  • 9. Struck Datenschutz, Frechen, Germany

Description

In this white paper we will describe the legal and data protection concept for GHGA, and how its development was shaped by the legal and data protection obligations under which GHGA operates.

Files

GHGA Legal Concept White Paper.pdf

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