Published August 24, 2023 | Version v1
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The data life cycle in 1+MG (v1.0) - version for 1+MG Framework

  • 1. PNED
  • 2. UNILU
  • 3. BBMRI-NL / NKI

Description

The documents are built on the 1+MG Glossary. In particular, the following expressions are used:

● Metadata: a set of data that describes and gives information about other data. Metadata do not include any data that are processed to produce any results of the data use such as health or genetic data. Metadata can be personal data where they contain information on the subject level (e.g. consent decisions of an individual data subject)

● Data collections: Data collections are data that come from the same collection context from the same controller(s) and can be characterised with non-personal metadata. A data collection can e.g. refer to data of a cohort or a public registry.

● Records: Data related to individual data subjects

● Data set: Data that are grouped in a certain context, e.g. for a user’s access.

● Enriched data: data where additional information is added, e.g. annotations

● Derived data: data that have been created by alteration of the original data (e.g. through data curation)

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DPbDD_Data-Life-Cycle_1MG.docx.pdf

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Additional details

Funding

B1MG – Beyond 1M Genomes 951724
European Commission