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Published May 19, 2023 | Version 1.0
Project deliverable Open

FAIR Health Data Portal expected users' interactions

  • 1. Barcelona Supercomputing Center
  • 1. SAS
  • 2. LUMC
  • 3. ECRIN
  • 4. UB
  • 5. BBMRI-ERIC
  • 6. CSC

Description

The deliverable is focused on creating a reference architecture for a health data portal that follows the FAIR principles (Findable, Accessible, Interoperable, and Reusable). The portal is intended to serve as an access point for various users and provide them with relevant information. The first step is to identify the different user profiles that will interact with the portal, such as citizens, researchers, and infrastructure providers, as each user group has different expectations and needs. The report categorizes these user profiles into fourteen categories based on legal roles, temporal aspects, and other relevant factors. Eight main profiles are defined, along with sub-profiles to accommodate diverse user demands. The deliverable also introduces user personae, which represent typical users and their goals, challenges, needs, and expectations from the FAIR data portal. These personae help in understanding the future users of the portal. The ultimate goal of this effort is to design a reference architecture for the FAIR health data portal, which will enable the interoperability of existing resources by defining the necessary information for their connection. The work done in other HealthyCloud work packages, particularly WP3 and WP4, is important for identifying data-oriented resources and will contribute to the overall goals of WP6 and the development of the FAIR health data portal.

Files

D6.1_Updated.pdf

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