Recommendations for integration in HealthyCloud, including an analysis of data hub patterns of governance

"Recommendations for Integration in HealthyCloud, including an Analysis of Data Hub Patterns of Governance", specifically Deliverable D4.1. discusses the work of WP4 in the HealthyCloud project, which focuses on the management of health data by dedicated infrastructures called data hubs. The publication describes the first task of WP4, which involves capturing the different governance and auditing models behind data hubs across Europe managing health data. The authors conducted a survey in collaboration with WP3 to analyze existing regional and national initiatives, as well as European projects related to domain-specific data hubs. The publication includes the analysis of the survey responses, through the stratification of the results, and presents patterns of data hub governance. It concludes with recommendations for integration in HealthyCloud based on the findings. The publication provides a definition of a health data hub and data governance in the context of the HealthyCloud project and describes the process of collecting data from representative data hubs in Europe. Overall, the publication provides insights into the management of health data in Europe and recommendations for improving the integration of data hubs into the HealthyCloud ecosystem.