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Published December 1, 2022 | Version v1
Journal article Restricted

Development of a standardized person-centered outcome set for implementation in routine diabetes care: results of a cross-national Delphi study

Authors/Creators

  • 1. Department of Internal Medicine III, Divison of Endocrinology and Metabolism, Medical University Vienna, Austria
  • 2. Department of Quality and patientcare, Erasmus Medical Center, Rotterdam, the Netherlands
  • 3. Charité Center for Patient-Centered Outcome Research, Department of Psychosomatic Medicine, Center for Internal Medicine and Dermatology, Charité - Universitätsmedizin Berlin, Germany
  • 4. Department of Information Systems and Decision Support, Vall d'Hebron Institute of Research (VHIR), Vall d'Hebron Barcelona Hospital Campus, Spain
  • 5. Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, Kings College London, UK
  • 6. Medtronic International Trading Sàrl, Tolochenaz, Switzerland
  • 7. JDRF International, New York, NY, USA
  • 8. Roche Diabetes Care GmbH, Mannheim, Germany
  • 9. Department of Diabetes, King's College London, UK
  • 10. Department of Medicine, Karolinska Institutet, Karolinska University Hospital Huddinge, Sweden
  • 11. Diabeter Center for Pediatric and Adolescent Diabetes, Rotterdam, The Netherlands
  • 12. Department of Molecular and Clinical Medicine, Institute of Medicine, University of Gothenburg, Sweden
  • 13. Eli Lilly and Company, Indianapolis, IN, USA
  • 14. European Patients' Forum (EPF), Brussels, Belgium
  • 15. Section for Outcomes Research, Center for Medical Statistics, Informatics and Intelligent Systems, Medical University of Vienna, Austria

Description

This is a pre-print of our Delphi study to develop a person-centered outcome set for routine diabetes care in Europe:

Standardized collection of patient-reported outcomes (PROs) integrated with clinical data can empower patients and enhance diabetes care. We sought to develop a person-centered outcome set for type 1 and type 2 diabetes containing patient-relevant and clinically meaningful outcomes that is feasible and sustainable in international healthcare settings, and will be implemented and tested in Europe as part of the H2O project.

A questionnaire-based three-round Delphi exercise based on previously identified outcomes was undertaken to reach consensus on the outcome set.

The here developed person-centered outcome set for diabetes was agreed by four international key stakeholder groups and allows for collecting standardized patient-relevant diabetes outcomes at scale to inform individual and population level healthcare decision-making.

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Additional details

Funding

European Commission
H2O - H2O Health Outcomes Observatory 945345