Trusted Research in the Public Eye: A toolkit for public engagement for trusted research environments (TREs).

Public opinion regarding the use and reuse of sensitive and personal data is very influential e.g. Care.data and the recent GP Data for Planning Research system which has been delayed for several months after launch to clarify data protection fears. Work by the Wellcome Trust’s Understanding Patient Data (UPD) programme has shown that active engagement with the public and patient groups allows dialog, understanding and mutual trust. TREEHOOSE worked together with patient and public groups to identify concerns of trust and security with public cloud TREs and co-develop ideas which are detailed in this report.