Published December 23, 2020 | Version 1.0
Other Open

Inventory of infrastructures providing support for integration of cohort data

Creators

  • 1. ECRIN

Contributors

  • 1. PSSJD
  • 2. ISGlobal

Description

The SYNCHROS repository, already presented in Deliverable 2.3 and available at https://repository.synchros.eu, was created to share key information on initiatives that harmonise and/or integrate cohort data. An important feature of all these initiatives is the type of infrastructure used to gather the information from the different cohorts and perform data analysis across them.

The aim of this deliverable is to provide an inventory of existing infrastructures from the revised SYNCHROS repository initiatives. For the purpose of this deliverable, only those initiatives where an infrastructure for data analysis was identified were considered. Both the data layout within the infrastructure and the software used for the data analysis are discussed in detail. In addition, potential challenges in data analysis within the infrastructures have been identified.

Therefore, the document contains the following information:

  1. Infrastructure inventory of the SYNCHROS repository initiatives.
  2. Types of data lay-out within the infrastructures.
  3. Types of software mostly used in the different infrastructures.
  4. Challenges in analysing data within infrastructures.

Notes

This report was created in the context of the SYNCHROS project. SYNCHROS (SYNergies for Cohorts in Health: integrating the Role of all Stakeholders) is an EU-funded Coordination and Support Action (H2020, ref. no. 825884), aimed at developing a sustainable strategy for the integration and harmonisation of health cohort initiatives and networks across Europe and internationally. Through intensive collaboration with stakeholders (e.g. researchers, funding bodies, coordinators of cohort harmonisation and integration initiatives, policy-makers), SYNCHROS aims to create a strategic agenda for an enhanced international coordination and sustainable recommendations for better collaboration of cohorts globally, towards the development of stratified or personalised medicine.

Files

SYNCHROS D2.4_Inventory of infrastructures providing support for integration of cohort data.pdf

Files (1.2 MB)

Additional details

Funding

European Commission
SYNCHROS – SYNergies for Cohorts in Health: integrating the ROle of all Stakeholders 825884