Public and participant involvement in Population Research UK

The aim of this scoping review was to develop a set of recommendations for Population Research UK (PRUK) on their approach to participant and public involvement and engagement (PPIE). Information from 18 relevant reports were found and analysed by searching research databases, the grey literature and through stakeholder input. The following recommendations are based on the identified themes related to PPIE in data linkage using longitudinal population studies (LPS): Transparency, Public benefit, Acceptability, Two-way dialogue, Opportunities and mechanisms for decision making, and Education. Building trust was identified as an overarching goal underlying the PPIE activities.