National Research Data Infrastructure for Personal Health Data (NFDI4Health): Version 2.0
Creators
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Juliane Fluck1
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Wolfgang Ahrens2
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Iris Pigeot2
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Hajo Zeeb2
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Fabian Prasser3
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Sylvia Thun3
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Matthias Schulze4
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Oya Beyan5
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Holger Fröhlich6
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Horst Hahn7
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Martin Golebiewski8
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Wolfgang Müller8
- Sebastian Klammt9
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Tobias Pischon10
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Linus Grabenhenrich11
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Lothar H. Wieler11
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Juliane Gehrke12
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Sebastian C. Semler12
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Ute Nöthlings13
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Benedikt Buchner14
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Ralf Depping15
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Jens Dierkes15
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Hubertus Neuhausen15
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Oana Brosteanu16
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Matthias Löbe16
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Markus Löffler16
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Frank Meineke16
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Toralf Kirsten17
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Harald Kusch18
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Ulrich Sax18
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Carsten Oliver Schmidt19
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Dagmar Waltemath19
- Johannes Darms1
- Birte Lindstädt1
- 1. ZB MED - Information Centre for Life Sciences
- 2. Leibniz Institute for Prevention Research and Epidemiology - BIPS
- 3. Charité/BIH
- 4. German Institute of Human Nutrition Potsdam-Rehbruecke
- 5. Fraunhofer FIT
- 6. Fraunhofer SCAI
- 7. Fraunhofer MEVIS
- 8. HITS gGmbH
- 9. KKS-Netzwerk e. V.
- 10. Max Delbrück Center for Molecular Medicine
- 11. Robert Koch Institute
- 12. TMF – Technologie- und Methodenplattform für die vernetzte medizinische Forschung e.V.
- 13. University of Bonn
- 14. Univeristy of Bremen
- 15. University- and City-Library of Cologne
- 16. University of Leipzig
- 17. UAS Mittweida
- 18. University Medical Center Göttingen
- 19. University of Greifswald
Description
Germany has accumulated a wealth of health-related personal data from well-designed cohort studies and health surveillance systems (healthy individuals) as well as clinical trials (patients) that are characterised by a deep phenotyping of study subjects with questionnaires, medical examinations and molecular/genetic profiling. Their longitudinal nature and high quality make these data a valuable research resource for the development of preventive and therapeutic measures on the individual and the population level. NFDI4Health represents an interdisciplinary research community by integrating major German institutions experienced as data holders, data analysts and methodology developers. It builds on established structures, competences and know-how and expects a rapidly growing support and participation of the research community. NFDI4Health aims to create the most comprehensive inventory of German epidemiological, public health and clinical trial data to date. NFDI4Health will build a centralised data catalogue with elaborate search functionalities, sophisticated data access management, and a data analysis toolbox, while respecting stringent requirements for privacy concerning personal health data. Standardisation services will ensure a high degree of interoperability. Use cases covering prototypical study types and areas of research will show the feasibility of a harmonised implementation of all infrastructures, tools and services in accordance with our user communities.
Notes
Files
2021-10-07_NFDI4Health_Application_V2_0_public.pdf
Files
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