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Łaszewska, Agata; Helter, Timea; Perić, Nataša; Simon, Judit

The PECUNIA Patient-Reported-Outcome-Measure-Mental Health Compendium (PECUNIA PROM-MH Compendium) is a Microsoft Excel©-based electronic library of non-disease specific PROMs used in MH research. The PECUNIA PROM-MH Compendium provides meta-data information of existing, publicly available generic PROMs suitable for use in (mental) health research and their applicability in multi-sectoral, multi-national and multi-person (economic) evaluations. It was developed by the Department of Health Economics, Center for Public Health, Medical University of Vienna as part of the Horizon 2020 research project PECUNIA (ProgrammE in Costing, resource use measurement and outcome valuation for Use in multi-sectoral National and International health economic evaluAtions - GA No 779292). In terms of outcome assessment, the project aimed for harmonization in multi-national, multi-sectoral and (where relevant) multi-person economic evaluations by addressing cross-country variations in utility measurement and harmonising methods for broader wellbeing measurement among others.

The methodology of deriving PROMs and their meta-data included in the PROM-MH Compendium library followed a two-step process. Firstly, a systematic literature review was conducted in five bibliographic databases from 2008 until February 2020 to identify relevant non- disease specific PROMs used in mental health research for the measurement of quality of life/well-being, or recovery. Secondly, secondary searches in PubMed and Google were conducted to acquire most up-to-date PROM meta-data information. Meta-data information was searched in scientific articles, instrument manuals, and web-based sources (e.g. questionnaire websites).

The PECUNIA PROM-MH Compendium Version 1.0 consists of 204 unique instruments (PROMs) alongside their comprehensive meta-data and is browseable according to main PROM characteristics. Information about each instrument is organised in five sections:

  1. BASIC CHARACTERISTICS (information on the year of publication, country (language) of origin, number of items, administration mode, other language versions, etc.);
  2. SCORING (information on the level-sum scoring, standardised scoring, weighted preference-based scoring, availability of preference-based value sets, availability of mapping studies, etc.);
  3. VALIDATION IN THE MENTAL HEALTH FIELD (information about validation studies for different mental disorders);
  4. APPLICATION IN MULTI-SECTORAL, MULTI-NATIONAL, MULTI-PERSON (ECONOMIC) EVALUATIONS (information whether an instrument: i) has separate adult and child/adolescent versions available, ii) has a proxy-completion option available, iii) assesses outcomes beyond health, i.e. capabilities, iv) has multiple language versions available, v) has a preference-based value set available, and vi) has a preference-based value set available in more than one country);
  5. OTHER (link to the manual and terms of use if available for the specific instrument).
Restricted Access

You may request access to the files in this upload, provided that you fulfil the conditions below. The decision whether to grant/deny access is solely under the responsibility of the record owner.

The use of the PECUNIA PROM-MH Compendium is free for non-commercial purposes and is conditional upon citation of the PECUNIA PROM-MH Compendium in any resulting work/publication as follows:

  • Access: Łaszewska A, Helter H, Perić N, Simon J: PECUNIA PROM-MH Compendium. Version 1.0; 20 Nov 2020, doi: 10.5281/zenodo.5037082

Anyone whishing to use the PECUNIA PROM-MH Compendium for non-commercial research, healthcare and academic teaching activities can do so free-of-charge following registration. 

Please go to the project website to complete the registration form https://www.pecunia-project.eu/tools/prom-mh-compendium

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