Project deliverable Open Access
Maria Knoppers, Bartha; Bernier, Alexander; Koayes, Myriam
The Centre of Genomics and Policy has provided a holistic review of the consent materials, governance documentation, and data use permissions of 31 participating euCanSHare cohorts. The data use permissions inherent in the cohorts have been compared and principal barriers to ethico-legal interoperability have been identified. For each cohort, a standardized representation of the applicable ethico-legal permissions has been produced, both in a standardized ADA-M form and in a more traditional textual summary.
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D1.3_euCanSHare_MCG_30112020.pdf
md5:cdadaa27476ad98d7a267f08aaf61e71 |
571.6 kB | Download |
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Views | 44 | 44 |
Downloads | 38 | 38 |
Data volume | 21.7 MB | 21.7 MB |
Unique views | 41 | 41 |
Unique downloads | 33 | 33 |