Proposal Open Access

Backpack – Person Centred Health, Care and Wellbeing

Nicolas Van Labeke

The proposal seeks to understand the personal behaviours, journeys and access points of Multiple Sclerosis (MS) citizens, in order to build out an eco-system for a Personal Data Store (PDS) and elicit issues around personal control over personal data.
Research and recent reports highlight the urgent need for more integrated person-centred services as a means of delivering better patient outcomes, better clinical outcomes and better economic outcomes. Different implementation scenarios carry different configurations of cost, risks and benefits for different stakeholding gro ups, and the implementation of digital services has suffered in the past from lack of co-production or consultation with people and stakeholders on the ground before implementation.
The proposed project will enable a group of citizen participants (plus organisations and their representatives) to interact in person-centred scenarios. These individuals may have long termconditions or professional interests with such condition – we have identified Multiple Sclerosis (MS) as a potential starting point – and we will identify needs, barriers, benefits and co-produce implementation scenarios.

Files (1.6 MB)
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A - Backpack - Protocol v2.pdf
md5:45098424dd7e23c04a1812ef9d42c642
161.3 kB Download
Backpack - Cover Letter v2.pdf
md5:401e3b3352c0c573e7d9fa7c637a0eab
275.9 kB Download
Backpack - Participant Consent Form v4.pdf
md5:3e67b5fbed8b393390fafd9aee528b23
58.3 kB Download
Backpack - Participant Information Sheet (Lab 1) - v2.pdf
md5:921747c6e971215f79f3f96ca46f37cd
129.9 kB Download
Backpack - Participant Information Sheet (Lab 2) - v2.pdf
md5:2a7cb913ff9a6017fc43ec9ff18b460b
129.4 kB Download
Backpack - Participant Information Sheet (minilab) - v2.pdf
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126.6 kB Download
Backpack - Second Clarification Letter.pdf
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242.1 kB Download
NRES 15-YH-0358 FIFO 21.08.15.pdf
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301.1 kB Download
NRES 15-YH-0358 Prov Opn 24.07.15.pdf
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176.7 kB Download
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