The MJFF Patient Engagement Zenodo Community is a curated, open-access repository of resources to help study teams access publications and resources related to patient engagement, patient experience data, and research participation in Parkinson’s disease. Managed by the Patient Engagement team at The Michael J. Fox Foundation for Parkinson’s Research (MJFF), this community  includes materials that explore how patient and care partner perspectives inform research, how patient experience data are generated and applied, and how recruitment and retention practices can support more inclusive, participant-centered Parkinson’s research. 

Resources may include outputs related to patient input, research participation, study design, patient experience data, recruitment and retention, and practical approaches for making Parkinson’s research more participant-centered. 

By making these materials openly available, MJFF aims to support the adoption of patient-centered approaches and improve the relevance, and accessibility of Parkinson’s research. 

Questions can be sent to patientengagement@michaeljfox.org.