Published June 28, 2023 | Version 1.1
Other Open

The FAIR Game

Authors/Creators

  • 1. Leiden University Medical Center
  • 2. Istituto Superiore di Sanità
  • 3. Radboudumc
  • 4. Academic Medical Center
  • 5. Amsterdam UMC
  • 6. Polytechnic University of Madrid
  • 7. INSERM - US14 Orphanet
  • 8. Heidelberg Medical University
  • 9. University Medical Center Groningen

Description

A game design document describing collaborators, credits, materials, implementations, and workflows of the FAIR Game.

The FAIR Game is a training resource to increase understanding of the benefits of implementing the FAIR data principles.

The game takes the user through a journey of linking patient data across different rare disease registries. The registries differ in location, language and patients. The user must find a drug that treats his/her patient by researching several registries. The challenge is to achieve that without FAIR data, and the solution includes unblocking the "ontology room", where after data is made FAIR, a federated analysis of FAIR data in real-time is possible. With the ontology room enabled, the solution is instantaneous.

Files

FAIR Game (1).pdf

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Additional details

Related works

Has part
Workflow: https://tess.elixir-europe.org/workflows/fair-game-plan (URL)
Workflow: https://tess.elixir-europe.org/workflows/fork-of-fair-game-plan (URL)
Is supplemented by
Video/Audio: 10.5281/zenodo.8090677 (DOI)
Presentation: 10.5281/zenodo.8090587 (DOI)
Poster: 10.5281/zenodo.8090715 (DOI)

Funding

European Commission
EJP RD - European Joint Programme on Rare Diseases 825575