Public engagement: Data for science and health

Trustworthy data science depends on engagement with patients and the public- the communities who are affected by data science and digital tools used in healthcare and health research.

Datasets, digital tools and analytics need to be designed for – and with – diverse populations, so they don’t only work for some groups at the expense of others.

Our speaker from Wellcome Trust will share three examples of different approaches to engaging with patients and the public:

• Closing gaps in patient data for Black and South Asian communities: a nationally representative survey, community research and engagement
• A public guide to large datasets: cocreated with experts and members of the public
• An easy-read guide to NHS data: cocreated with adults with learning disabilities