Public Involvement and Engagement in Sensitive Data Research: Lessons Learned from the DARE UK Sprint Exemplar Projects

This report summarises the Public Involvement and Engagement (PIE) activities carried out as part of nine DARE UK Sprint Exemplar Projects to promote a better understanding of how members of the public can be involved in and contribute to sensitive data research. It also discusses the characteristics of these activities, including lessons learned from the PIE Leads coordinating their design and delivery.

A set of recommendations are provided at the end of this report. While they are to be considered specific to the contextual circumstances of the DARE UK Sprint Exemplar Projects, they can encourage reflection on how best to involve and engage members of the public in sensitive data research, including the resources necessary to promote meaningful and inclusive PIE activities.