Published November 7, 2021 | Version v1
Journal article Open

DIFFICULTIES EXPERIENCED AT HOME BY PARENTS OF PRESCHOOL CHILDREN WITH AUTISM SPECTRUM DISORDER

  • 1. RN, Metal Health Nurse
  • 2. Associate Professor, Department of Nursing, Faculty of Health and Caring Sciences, University of West Attica, Athens, Greece
  • 3. Assistant Professor, Department of Nursing, Faculty of Health and Caring Sciences, University of West Attica, Athens, Greece
  • 4. Lecture, Department of Nursing, Faculty of Health and Caring Sciences, University of West Attica, Athens, Greece

Description

Introduction: The parents experience difficulties  children with Autism Spectrum Disorder. Objective: The study of the subjective experience and difficulties experienced at home by parents of preschool children diagnosed with Autistic Spectrum Disorder (ASD). Μethod and Μaterial: Qualitative research with a sample of 6 parents, all residing in the wider Athens area. Data collected with unstructured interviews that took place from September to December 2019. Data analysis was based on the Grounded Theory methodology. Results: The analysis of data revealed the following four thematic units: a) Lack/insufficiency of services, b) Need for at-home support, c) Everyday problems, d) Consequences/difficulties. Conclusions: There is a need for a national plan of support for families raising children with ASD, revision of therapeutic protocols, but also more effective sensitization of the whole of society.

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