CONP Ethics Toolkit v1.0.4
Creators
- 1. Centre of Genomics and Policy, McGill University
- 2. Privacy by Design Centre of Excellence, Ryerson University
- 3. Ontario Brain Institute
- 4. Neuroethics Canada, University of British Columbia
- 5. The Neuro, McGill University
- 6. University of British Columbia
- 7. Tanenbaum Open Science Institute, McGill University
- 8. Walter Stewart Associates
- 9. McGill Centre for Integrative Neuroscience
- 10. University of Toronto
Description
CONP Ethics Toolkit consisting of:
- Model prospective consent clauses
- Retrospective consent filter
- De-identification information and tools
This consent toolkit is the product of extended discussions and careful drafting that considers both Canadian and international ethical frameworks and research practice.
In adapting this consent toolkit for your own research needs, we encourage you to mention to your research ethics board that your consent materials are modeled after those created by the CONP Ethics and Governance Committee. The Committee's members include internationally recognized experts in research ethics, neuroethics, data governance, and law: Trudo Lemmens (Chair), Alexander Bernier (Manager), Ann Cavoukian, John Clarkson, Jason Karamchandani, Roland Nadler, Dylan Roskams-Edris, and Walter Stewart. Further feedback was graciously provided from members of the CONP community, in particular Patrick Bermudez, Marcel Farrés Franch, Jessica Royer, Robert Zatorre, and past Committee Members Bartha Maria Knoppers, Lindsay Green Noble, and Judy Illes.
GitHub source: https://github.com/CONP-PCNO/Ethics_and_Data_Governance
Files
CONP_Consent_Guide_v1.0.4.md
Files
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Additional details
Related works
- Is supplement to
- https://github.com/CONP-PCNO/Ethics_and_Data_Governance/tree/1.0.1b (URL)