When health records become representations of people
Authors/Creators
Description
Health records are increasingly linked across services and over time, and used as training material for models that generate claims about the people they describe. This position paper argues that composition — linkage combined with unstructured or derived content — changes what a health record is, and that the governance frames it examines do not yet treat composition itself as the event that creates a distinct governable representational object. It proposes a three-layer account of what a composed record contains, and identifies where governance obligations can attach to each layer.
The paper extends the classification proposed in The Trusted Hub (https://doi.org/10.5281/zenodo.20613962), responding to feedback on that preprint and to subsequent developments in Canadian standards. Mental health data is used as the design case, on the grounds that a framework which holds for records of that kind is more likely to hold for less demanding ones.
Files
When health records become representations of people.pdf
Additional details
Additional titles
- Subtitle
- Composition, inference, and why de-identification no longer settles the question
Related works
- Is new version of
- Preprint: 10.5281/zenodo.20613962 (DOI)
Dates
- Copyrighted
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2026-08-13