Published February 3, 2026
| Version v1
Poster
Open
PaLaDIn - Improving Decision Making in Neuromuscular Diseases
Authors/Creators
- 1. Newcastle University
- 2. TREAT-NMD
- 3. FSHD Society
- 4. Amsterdam UMC, Location AMC
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5.
Amsterdam UMC Location University of Amsterdam
- 6. Castor
- 7. Leiden University Medical Center
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8.
Parent Project Onlus
- 9. Ludwig-Maximilians-Universität München Medizinische Fakultät
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10.
Duchenne UK
Description
PaLaDIn (Patient Lifestyle and Disease Data Interactium) is a four-year Innovative Health Initiative-funded project launched in January 2024. Central to the success of the project is the Interactium®, a state-of-the-art data platform focused on collecting data directly from patients to improve decision making about their health, care, research, and treatment.
The project will pilot the approach in rare neuromuscular diseases (NMDs) before being scaled up to other rare diseases.
The PaLaDIn consortium brings several key players from the rare NMD field together including universities, SMEs, and several patient organisations. The partners involved in the PaLaDIn consortium are listed below:
- Amsterdam University Medical Center (Netherlands)
- Duchenne Parent Project aps (Italy)
- Duchenne UK (United Kingdom)
- Ephion Health (Spain)
- Friedrich-Baur-Institut Munich (Germany)
- FSHD Society (United States)
- Institut de Recerca Sant Pau (Spain)
- Leiden University Medical Center (Netherlands)
- Newcastle University (United Kingdom)
- TREAT-NMD (United Kingdom)
Files
PaLaDIn - Improving Decision Making in Neuromuscular Diseases.pdf
Additional details
Dates
- Available
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2026-02-03Poster