Permeating Boundaries of Expertise in Psychiatry: Integration of Patients as Contributors in the DSM Revision Periods
Authors/Creators
- 1. Department of History and Philosophy of Science and Medicine, Indiana University Bloomington
Description
Objectivity and patient-centered care represent twin commitments of psychiatry that existing diagnostic practices struggle to reconcile. This paper argues that integrating patients as experience-based experts (EBEs) into the American Psychiatric Association's DSM revision process advances both commitments simultaneously. Drawing on Thomas Gieryn's boundary-work framework, I examine how psychiatry's historically permeable disciplinary boundaries have enabled selective gatekeeping over knowledge production, generating epistemic injustices, particularly preemptive testimonial injustice and hermeneutical injustice, that undermine diagnostic validity and clinical outcomes. I first situate psychiatry's unique sociocultural position relative to somatic medicine, demonstrating why its phenomena are epistemically inaccessible without patient testimony. Further, I address well-established reservations surrounding patient integration, including concerns about intersubjective validity, taxonomic disruption, and tokenism, before proposing a structured integration model responsive to these hesitations. Leveraging Şerife Tekin's Multitudinous Self (MuSe) model and recent recommendations from the DSM's Structure and Dimensions Subcommittee, I outline how patient-EBEs can contribute structured phenomenological testimony and participatory review within formal revision committees. As Gieryn anticipated, I conclude that strategic patient integration does not erode psychiatric expertise but rather reveals that its boundaries were always more permeable than their gatekeepers have claimed.
Files
8 Kinzie K. Gamaleldin 20.5.2026.pdf
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(406.6 kB)
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Additional details
Dates
- Submitted
-
2025-05-04
- Accepted
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2025-05-20