Consensus Policy Recommendations For Data-Sharing, Access And Use Governance Policies (D6.6)
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Kartschmit, Nadja
(Other)
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Stam, Tanja
(Other)
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Bilal, Omnia
(Other)1
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Shinkins, Bethany
(Other)2
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Lumsden, Rebecca
(Other)3
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Clemente, Amaia
(Other)4
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Singleton, Peter
(Other)5, 6
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Kalra, Dipak
(Other)
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Gribbon, Philip
(Other)7
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Bardaji- Cruz, Maria
(Other)
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Hansen, Anne Funck
(Other)7
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Juknat, Ulrich
(Other)8
- Louati, Claudia (Other)
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Terkildsen, Morten Deleuran
(Other)9
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Groth Jensen, Lotte
(Other)10, 11
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Hansen, Rasmus Mølgaard
(Other)12
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Nielsen, Camilla Palmhøj
(Other)9, 12
- Peeters, Rita (Other)
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Colvin, Heather McQuarrie
(Other)
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Muehlendyck, Christian
(Other)8
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1.
National Institute for Health and Care Excellence
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2.
University of Warwick
- 3. Sanofi
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4.
Sanofi (France)
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5.
University College London
- 6. Cambridge Health Informatics Limited
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7.
Fraunhofer-Gesellschaft
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8.
Johnson & Johnson (Germany)
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9.
Aarhus University
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10.
University of Copenhagen
- 11. Defactum
- 12. DEFACTUM
Description
IDERHA is a European public-private partnership launched in April 2023. This pioneering project aims to create an open platform designed to enable connectivity, access, sharing, use and reuse of digital health data to maximize their value for patient care and medical research. In addition, IDERHA's policy recommendations will enhance regulatory and HTA decision making, facilitating access to digital health innovations for patients and health care professionals.
The deliverable D6.6 – Consensus Policy Recommendations for Data-Sharing, Access and Use Governance Policies under the IDERHA Project consolidates insights from literature reviews, a survey, and multistakeholder workshops to define concrete policy actions. These actions will enable data sharing within and beyond the European Health Data Space (EHDS).
Files
2025-11-28_D6.6_Consensus policy recommendations.pdf
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(2.4 MB)
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Additional details
Additional titles
- Alternative title (English)
- WP6 Policy recommendations to enable HTA and regulatory decision making