European Cystitis Observatory (ECO)
Published January 12, 2026 | Version V1
Report Open

Understanding Recurrent and Chronic Cystitis - Psychological impact of an ongoing battle. Evidence from Italy.

Authors/Creators

Contributors

Data collector:

Research group:

Supervisor:

  • 1. Nami Consulting

Description

This white paper is the first publication in the Understanding Recurrent and Chronic Cystitis series by the European Cystitis Observatory (ECO). It explores the psychological and quality-of-life burden associated with recurrent and chronic cystitis, with a specific focus on evidence from Italy.

The report introduces and contextualizes the Dimann dataset, a large-scale collection of patient-reported questionnaires gathered to better understand daily challenges, behavioral risk factors, and the lived experience of cystitis. With 34,000+ questionnaires collected across Europe, and 25,000+ observations in the Italian sample (2022–2025), the dataset offers a unique, person-centered perspective that complements clinical and epidemiological research.

Key insights highlight that cystitis is not only a clinical condition but also a social and psychological burden, often affecting mood, daily activities, relationships, and intimacy. The white paper also discusses diagnostic pathways and inconsistencies in real-world practice, including the use (and underuse) of urine testing and culture, and the implications for recurrence and antimicrobial resistance.

What this publication includes

  • A structured overview of recurrent and chronic cystitis and its real-world impact

  • The rationale, structure, and analytical potential of the Dimann dataset

  • A preliminary descriptive snapshot of the Italian sample (demographics, diagnostic behaviors, pathogens)

  • An exploration of patient-reported psychological and lifestyle impacts

  • Conclusions and highlights to support more integrated, patient-centered approaches

Disclosures & provenance
Issued by the European Cystitis Observatory (ECO). Conclusions and interpretations are those of ECO.
Prepared by Nami Consulting (Maria Ascolese, Erica Ravarelli) using a dataset provided by Dimann.
Funding: Yellow People Lab (owner of the Dimann brand). 
Clinical review: Dr. Oreste Risi, MD (Urologist).

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Additional details

Dates

Issued
2026-01-12
Publication date (first online release)

References

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