LIVING THE BURDEN: THE LIVED EXPERIENCE OF CAREGIVING BURDEN AMONG PARENTS OF CHILDREN WITH CEREBRAL PALSY
Authors/Creators
- 1. 1. PhD Candidate, King Saud University, Riyadh, Saudi Arabia.
- 2. 2. Community Nursing and Health Care Department, UQU, Makkah, Saudi Arabia.
- 3. 3. Professor, College of Nursing, King Saud University, Riyadh, Saudi Arabia.
Description
Background: Cerebral palsy (CP) affects not only the child but also the entire family. Raising a child with CP creates numerous challenges for the entire family.
Aim: To explore the lived experience of the burden on parents caring for children with cerebral palsy.
Methods: This qualitative study was conducted in March 2025 using a descriptive phenomenological approach to elucidate the phenomenon through parents experiences. A purposive sample of caregivers of children diagnosed with CP was used.
Results: One core theme, Never give up, emerged. Five main themes were identified: the physical burden of parents, the emotional burden of parents, challenges facing parents, the childs needs, and treatment. Conclusion: The studys findings indicate that family caregivers face significant burdens when raising children with CP, including increased financial, mental, and physical difficulties.
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