PhysAgeNet Deliverable D2.1 Compendium of legal, ethical and resource aspects for open data repositories

Network on evidence-based physical activity in old age (PhysAgeNet)

The deliverable is a main outcome of the COST Action CA20104 - Network on evidence-based physical activity in old age (PhysAgeNet). The main aim and objective of the Action is to establish a sustainable network fostering evidence-based research and practice of physical activity in older adults and enhancing integration of innovative ICT solutions based on open data consolidated research information, in order to promote health and reduce the burden of inactivity in ageing populations. 

Working Group 2 (WG2)

This WG will take an inclusive and holistic view in order to define relevant outcomes, markers and moderators in the context of technology-assisted physical activity for older persons. These variables will be structured making use of the WHO’s Healthy Aging Framework. Based on expert discussions and literature review, we will report these and define standards for utilizing these (D2.2). We will condense the list of variables to a minimal dataset of ‘must do’ and ‘should do’ and possibly ‘nice to have’ variables, ensuring a holistic approach (D2.3). This enables inclusion of established measures as well as promising, novel variables in our eventual repository ensuring its sustainability. As a prototype and demonstration of the use of the designed data structure, data of one or more actual project(s) will be delivered to an existing open data platform (D2.4). To ascertain ethical, legal and financial aspects for these procedures we will create a compendium (D2.1)

The WG1 objectives can be structured in the following research coordination objectives: 

The objective of this WG is to define what one should assess before and/or after technology-assisted physical activity interventions in old age and how to assess it. We aim to define standards and create a data structure to be implemented as open data repository utilizing an existing open data platform. Practical, legal, ethical and resource aspects will be documentedand tested for actual data delivery. The eventual repository will enable pooling of data from multiple studies after completion of this Cost Action. This WG will take a holistic approach making use of the Healthy Aging Framework to define and categorize outcomes, markers and moderators from multiple sources relevant for the investigation and evaluation of technology-assisted physical activity interventions.