Data Access and Usage in Health Care: Toward Responsibility and Trust

Data access and usage in medical research – clinical trials in particular – have become the new

“gold standard” in the entire health care domain (and beyond).

Access to and usage of this data, however, bear the potential of several “moral hazards” in terms
of responsibility and trust which jeopardize their very usefulness
and exacerbate long-standing critical tendencies in scientific research.

Open access to trial data, and trans- parency of related processes, is seen as a response to these hazards,
and a means for restoring key warran- ties of the respect of human dignity which characterize sound scientific practice as well as medical care.

The conference brings together academics and practitioners in order to promote both the advancement
of scientific research and the devel- opment of responsible practices
and sustainable solutions in health data processing.