Published March 24, 2025 | Version v1
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What are the strategies & good practices for engaging and sustaining patient communities?

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Description

The workshop was designed to provide members of the AIM community with an opportunity to discuss key topics shaping the future of AI and MLTC research, aiming to improve lives for those living with or caring for people with Multiple Long-Term Conditions. In collaboration with NIHR, six discussion topics with guiding questions were prepared to explore challenges and potential solutions. The session is part of "Pioneering AI in MLTC: Bridging Research and Practice Conference 2024" that took place on 9-10 Sept 2024 in Manchester.

The event welcomed 80-100 registered attendees, with 12-16 participants engaging in discussions on each topic and eight joining online. A one-hour session included 50 minutes for discussion, focusing on capturing attendees' insights and identifying three key takeaways for feedback.

There were 7 topics discussed in the workshop, this summary includes the discussion and takeaway from the 7th topic.

  • Topic 1: How can we mobilise knowledge that has been generated by AIM?

  • Topic 2: What are the strategies & good practices for engaging and sustaining patient communities?

  • Topic 3: How can we champion early career researchers in MLTC research?

  • Topic 4: What technical support is needed for the next stage of translation/impact?

  • Topic 5: Who do we need to engage to ensure broad collaboration for translating research?

  • Topic 6: How would we move towards system thinking and transdisciplinary research in MLTC?

  • Topic 7: What are the strategies & good practices for engaging and sustaining patient communities?


A playlist of the conference recordings can be accessed here

The AI for Multiple Long Term Conditions Research Support Facility (link to the same archived website) is based at The Alan Turing Institute, in partnership with Swansea University and the University of Edinburgh. The RSF offers AI and advanced data science expertise and support to the eight research consortia, as part of a broader £23M investment in multiple long-term conditions research (the AIM Programme). AIM RSF is funded by the NIHR Artificial Intelligence for Multiple Long-Term Conditions (AIM) programme (NIHR202647).

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