Health Data Research UK
Published October 4, 2024 | Version v1
Working paper Open

Enhancing Diversity and Quality in Health Data

Creators

  • 1. Health Data Research UK
  • 2. University of Leicester
  • 3. ROR icon University Hospitals Birmingham NHS Foundation Trust
  • 4. ROR icon University of Birmingham
  • 5. ROR icon University of Southampton
  • 6. University Hospitals Birmingham NHS Foundation Trust, Birmingham,
  • 7. ROR icon Office for National Statistics
  • 8. Institute of Psychiatry, Psychology & Neuroscience, Kings College London, UK
  • 9. Understanding Patient Data
  • 10. Centre for Statistics in Medicine, Botnar Research Centre, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences (NDORMS), University of Oxford, Oxford, UK
  • 11. Applied Health Research Unit, Nuffield Department of Population Health, University of Oxford, Oxford, UK
  • 12. University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK
  • 13. ROR icon British Heart Foundation Centre for Cardiovascular Science
  • 14. Department of Public Health and Primary Care
  • 15. National Institute for Health Research Blood Transplant Research Unit in Donor Health and Genomics
  • 16. British Heart Foundation Centre of Research Excellence, University of Cambridge, Cambridge, UK
  • 17. Usher Institute, College of Medicine and Veterinary Medicine, University of Edinburgh, Edinburgh, UK
  • 18. Population Data Science, Swansea University Medical School, Faculty of Medicine, Health, and Life Science, Swansea University, Swansea, UK
  • 19. Department of Metabolism, Digestion and Reproduction, Faculty of Medicine, Chelsea and Westminster Hospital Campus, Imperial College London, London, UK
  • 20. Nuffield Department of Primary Care Health Sciences, Radcliffe Observatory Quarter, University of Oxford, United Kingdom
  • 21. British Heart Foundation Cardiovascular Epidemiology Unit, Department of Public Health and Primary Care, National Institute for Health Research Blood Transplant Research Unit in Donor Health and Genomics, and British Heart Foundation Centre of Research Excellence, University of Cambridge, Cambridge, UK
  • 22. Diabetes Research Centre, Leicester Diabetes Research Centre, University of Leicester

Description

This paper addresses the long-standing disparities in health outcomes and access to healthcare experienced by ethnic minority groups in the UK. It highlights the challenges posed by the inconsistent collection and quality of ethnicity data, which became particularly evident during the COVID-19 pandemic. The paper presents key findings from the UK Health Data Research Alliance's Special Interest Group on Ethnicity Data Coding Standards, formed to address concerns about poor data quality. It offers recommendations to improve the consistency, transparency, and standardisation of ethnicity data collection across health and social care. The goal is to enhance data accuracy and completeness to better understand and address ethnic inequalities in healthcare.

Files

Enhancing Diversity and Quality in Health Data- UK Health Data Research Alliance-HDR UK.pdf

Files (812.8 kB)

Additional details

Dates

Available
2024-10-04