Enhancing Diversity and Quality in Health Data
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Quattroni, Paola1
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Routen, Ash2
- Alderman, Joe3
- Argent, Claire1
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Cusworth, Samuel4
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Dambha-Miller, Hajira5
- Denniston, Alastair6
- Drummond, Rose7
- Ganguli, Poushali8
- Hamilton, Nicola9
- Ideh, Uwaye1
- Khalid, Sara10
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Kwok, Aden Chun Hei11
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Laws, Elinor12
- Liu3, Xiaoxuan3
- Nafilyan, Vahe7
- Palmer, Jo3
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Pineda-Moncusí, Marta10
- Sampri, Alexia13, 14, 15, 16
- Tibble, Holly17
- Torabi, Fatemeh18
- Valabhji, Jonathan19
- Welsh, Claire18
- Withrow, Diana R20
- Wood, Angela M21
- Akbari, Ashley18
- Khunti, Kamlesh22
- 1. Health Data Research UK
- 2. University of Leicester
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3.
University Hospitals Birmingham NHS Foundation Trust
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4.
University of Birmingham
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5.
University of Southampton
- 6. University Hospitals Birmingham NHS Foundation Trust, Birmingham,
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7.
Office for National Statistics
- 8. Institute of Psychiatry, Psychology & Neuroscience, Kings College London, UK
- 9. Understanding Patient Data
- 10. Centre for Statistics in Medicine, Botnar Research Centre, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences (NDORMS), University of Oxford, Oxford, UK
- 11. Applied Health Research Unit, Nuffield Department of Population Health, University of Oxford, Oxford, UK
- 12. University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK
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13.
British Heart Foundation Centre for Cardiovascular Science
- 14. Department of Public Health and Primary Care
- 15. National Institute for Health Research Blood Transplant Research Unit in Donor Health and Genomics
- 16. British Heart Foundation Centre of Research Excellence, University of Cambridge, Cambridge, UK
- 17. Usher Institute, College of Medicine and Veterinary Medicine, University of Edinburgh, Edinburgh, UK
- 18. Population Data Science, Swansea University Medical School, Faculty of Medicine, Health, and Life Science, Swansea University, Swansea, UK
- 19. Department of Metabolism, Digestion and Reproduction, Faculty of Medicine, Chelsea and Westminster Hospital Campus, Imperial College London, London, UK
- 20. Nuffield Department of Primary Care Health Sciences, Radcliffe Observatory Quarter, University of Oxford, United Kingdom
- 21. British Heart Foundation Cardiovascular Epidemiology Unit, Department of Public Health and Primary Care, National Institute for Health Research Blood Transplant Research Unit in Donor Health and Genomics, and British Heart Foundation Centre of Research Excellence, University of Cambridge, Cambridge, UK
- 22. Diabetes Research Centre, Leicester Diabetes Research Centre, University of Leicester
Description
This paper addresses the long-standing disparities in health outcomes and access to healthcare experienced by ethnic minority groups in the UK. It highlights the challenges posed by the inconsistent collection and quality of ethnicity data, which became particularly evident during the COVID-19 pandemic. The paper presents key findings from the UK Health Data Research Alliance's Special Interest Group on Ethnicity Data Coding Standards, formed to address concerns about poor data quality. It offers recommendations to improve the consistency, transparency, and standardisation of ethnicity data collection across health and social care. The goal is to enhance data accuracy and completeness to better understand and address ethnic inequalities in healthcare.
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Enhancing Diversity and Quality in Health Data- UK Health Data Research Alliance-HDR UK.pdf
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Additional details
Dates
- Available
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2024-10-04