National Recommendations for Rare Disease Health Care

The National Recommendations for Rare Disease Health Care (the Recommendations) were written to help health professionals provide quality care for people living with rare disease, including people with a diagnosed rare disease and those who have not yet received a diagnosis. The Recommendations are aligned with the Australian Government’s National Strategic Action Plan for Rare Diseases. 

The Recommendations may be helpful for:

• Health professionals – to provide better care for people living with rare disease 
• People living with rare disease – to help in partnering with their health care team to plan the type of health care that works best for them 
• Policy makers – to help shape health care policy relating to rare disease.