Proceedings of the 1st ELSI Symposium: Ethical, Legal and Societal Insights & Outlook for Biobanks and Medical Research
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From June 4-6th 2024, the Symposium “Ethical, Legal and Societal Insights & Outlook for Biobanks and Medical Research” took place at the headquarters of the International Agency for Research on Cancer (IARC) in Lyon.
Over 2 ½ days, seven keynotes and 30 unique presentations showcased state of the art insight and outlook on ethical, legal, and societal implications (ELSI) relevant for biobanks and biomedical research. It celebrated the faceted plurality of ELSI expertise across countries and disciplines, stemming from both interdisciplinary service provision and research such as GDPR compliance, genetic counselling, science and technology studies, ethics, or social sciences.
Whereas the ELSI experts across BBMRI’s National Nodes have been meeting annually over the past decade, this meeting was the first public symposium bringing together 80 participants from around the globe for an in-depth exchange.
Organized in eight sessions, the ELSI Symposium encompassed aspects such as data privacy, EHDS, ethics of AI, genetics and genomics, gender, governance, regulatory compliance or datafication. It closed with the Young Researchers Awards for presentations and a poster, committing to make such gatherings a regular event.
Stay tuned to join us in Bilbao, Spain in 2025.
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BIOBANK ACADEMY ELSI_SYMPOSIUM_Lyon_Proceedings.pdf
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(2.5 MB)
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