Institut za onkologiju i radiologiju Srbije / Institute for Oncology and Radiology of Serbia
Published December 6, 2023 | Version v.1
Journal article Restricted

Have we made progress in taking care of adolescents and young adults with cancer? Results of a European multi-professional survey

Authors/Creators

  • 1. Institute for Oncology and Radiology of Serbia (IORS) Belgrade
  • 2. Pediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale Tumori, Milan, Italy
  • 3. University Hospital Ghent Cancer CenterThe institution will open in a new tab, Ghent, Belgium
  • 4. Children's Cancer and Leukaemia Group, Leicester, United Kingdom
  • 5. National Oncology Hospital, Sofia , Bulgaria
  • 6. Youth Cancer Europe, Cluj-Napoca, Romania
  • 7. Childhood Cancer International Europe, Vienna, Austria
  • 8. ROR icon Birmingham City University
  • 9. ROR icon Hôpital Lyon Sud
  • 10. ROR icon The Christie Hospital
  • 11. University Medicine Essen, Clinic for Particle Therapy, West German Proton Therapy Center Essen, Essen,
  • 12. Princess Máxima Center for Pediatric Oncology and University Medical Center Utrecht, Netherlands

Description

Abstract

Background: It is well documented that traditional health care models do not meet the specific needs of Adolescents and Young Adults (AYA) cancer patients. Methods: We explore a map of the development of age-specific AYA cancer care across Europe, from the perspective of healthcare professionals with an interest in AYA care, in order to understand the specific challenges and map progress over time. An on-line survey was developed by international professional cancer organisations. Results: We had 377 respondents from 60 countries. The majority of respondents were physicians 298 (79%), a minority of survey respondents (39, 10.4%) work exclusively with AYA patients, most respondents declared substantial and routine clinical service collaborations to provide care and treatment to AYA with cancer. Policy for the multidisciplinary management of AYA cancer patients commonly appears in Europe now, and was reported by 234 (78.52%) respondents. Specific professional training for AYA cancer care is not uniformly available. Conclusion: There is considerable opportunity for many organisations to work together in raising the profile of AYA cancer related issues, in providing education and in encouraging research and collaboration. © Fondazione IRCCS Istituto Nazionale dei Tumori 2023.

 

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Additional details

Identifiers

ISSN
0300-8916
PMID
37486101

Dates

Available
2023-07-24