Published April 23, 2024 | Version v1
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English translation of project description websites of three decentralized studies on rare diseases within the CORD project

  • 1. Technische Universität Dresden

Description

The current status (HTML file) and its English translation (PDF file) of the project description for three medical use cases from the German Protal for Medical Research (German: "Forschungsdatenplatform für Gesundheit" (FDPG)) project register are stored here. 

The use cases originate from the "Collaboration on Rare Diseases" (CORD-MI) project and address the following rare diseases:

  • Cystic Fibrosis and Pregnancy or Delivery
  • Phenylketonuria, Comorbidities and Pregnancy or Delivery
  • Kawasaki Syndrome and Multisystem Inflammatory Syndrome in Children (MIS-C)

 

The websites are available as of 23.04.2024 under the following links:

Files

FDPG - CF - EN.pdf

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