Published April 23, 2024
| Version v1
Other
Open
English translation of project description websites of three decentralized studies on rare diseases within the CORD project
Description
The current status (HTML file) and its English translation (PDF file) of the project description for three medical use cases from the German Protal for Medical Research (German: "Forschungsdatenplatform für Gesundheit" (FDPG)) project register are stored here.
The use cases originate from the "Collaboration on Rare Diseases" (CORD-MI) project and address the following rare diseases:
- Cystic Fibrosis and Pregnancy or Delivery
- Phenylketonuria, Comorbidities and Pregnancy or Delivery
- Kawasaki Syndrome and Multisystem Inflammatory Syndrome in Children (MIS-C)
The websites are available as of 23.04.2024 under the following links:
- CORD-MI study on Cystic Fibrosis (CF): https://forschen-fuer-gesundheit.de/fdpgx-project/cord-cf/
- CORD-MI study on Phenylketonuria (PKU): https://forschen-fuer-gesundheit.de/fdpgx-project/cord-pku/
- CORD-MI study on care monitoring I: Kawasaki and MIS-C: https://forschen-fuer-gesundheit.de/fdpgx-project/cord-pims/
Files
FDPG - CF - EN.pdf
Files
(3.5 MB)
| Name | Size | Download all |
|---|---|---|
|
md5:39ce1e5f7e798488bb378e436d9d323b
|
780.0 kB | Preview Download |
|
md5:4b5de1db3694fb728cd9f47e9dbbe2cd
|
382.2 kB | Preview Download |
|
md5:bb1b80e042af99b21118901b0203f631
|
662.2 kB | Preview Download |
|
md5:3bf8c7034eb91076332cc4c9bcb0aa59
|
340.0 kB | Preview Download |
|
md5:a1550ef941175af10ce8f5107f90884c
|
809.3 kB | Preview Download |
|
md5:b3ff7360f8253bb2d7b02fbdf007d7b7
|
499.6 kB | Preview Download |
Additional details
Software
- Repository URL
- https://forschen-fuer-gesundheit.de/