Strategic Oversight Across Real-World Health Data Initiatives in a Complex Health Data Space

List of initiatives curated by the authors of the paper: Strategic Oversight Across Real-World Health Data Initiatives in a Complex Health Data Space: A call for collective responsibility. In the context of this work, the term 'initiative' refers to plans, projects, or studies focused on unlocking real-world health data, making it accessible for research, innovation, and policy purposes. For each initiative, details about the covered regions, associated countries, website links, and whether the initiative is specific to healthcare or encompasses multiple domains are presented, as available. Important Disclaimer: The authors acknowledge that this list is neither exhaustive nor free from bias, influenced by their geographical location and their research emphasis on chronic disorders. However, this list offers a starting point to address the issues discussed in this position paper, aiming to provide readers with insights gained after extensive online exploration. The list resulting from our work can assist individuals seeking clarity on the evolving landscape of health data initiatives. While a comprehensive overview remains elusive, this list serves as a valuable resource to navigate the intricate ecosystem.

The paper is accepted (on 22 December 2023) as short paper for the the 17th International Joint Conference on Biomedical Engineering Systems and Technologies (HEALTHINF 2024). 

Publication: the paper will be included in the Conference Proceedings, which will be published under an ISBN number by SCITEPRESS, on paper and digital support, and made available for online consultation at the SCITEPRESS Digital Library. Online publication is exclusive to papers which have been both published and presented at the event.