Published November 28, 2023 | Version 1.0
Dataset Open

Formalized information from the study protocols of three decentralized studies on rare diseases within the CORD project

  • 1. Technische Universität Dresden
  • 2. ROR icon Universitätsklinikum Würzburg
  • 3. Universitätsklinikum Carl Gustac Carus Dresden
  • 4. ROR icon Berlin Institute of Health at Charité - Universitätsmedizin Berlin

Description

The file contains formalized information from the study protocols of decentralized studies on rare diseases within the CORD project. This includes the diagnoses that are coded with ICD-10-GM. The following diseases or use cases are described:

  • Cystic Fibrosis and Pregnancy or Delivery
  • Phenylketonuria, Comorbidities and Pregnancy or Delivery
  • Kawasaki and Pediatric Inflammatory Multisystem Syndrome (PIMS)

Files

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Additional details

Additional titles

Subtitle
CORD - Collaboration on Rare Diseases