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Published November 17, 2023 | Version v1
Project deliverable Open

Report on the usage and auditing data hubs indicators and proposal of an incentive system

  • 1. ROR icon Barcelona Supercomputing Center
  • 1. ROR icon Centre for Genomic Regulation
  • 2. SAS
  • 3. SPMS
  • 4. ROR icon Barcelona Supercomputing Center
  • 5. BBMRI-ERIC
  • 6. ROR icon Gesundheit Österreich

Description

HealthyCloud WP4 'Experiences on health data management: national, regional and domain-specific
data hubs' focuses on how health data is managed by the data hubs. Data hubs play and will continue to play an important role in guaranteeing that health data is accessed, analyzed, shared and reused following the general principles of a framework that is ethically sound and legally compliant, as outlined by HealthyCloud WP2 'aal, Legal and Societal impact of cross-border health data access for cloud analysis'. Data hubs are also well-positioned to identify and elaborate on the different incentives that drive individuals and organizations to deposit data in and share it through those hubs. In this sense, deliverable D4.3 'Report on the usage and auditing data hubs indicators and proposal of an incentive system' presents a comprehensive study of both usage and auditing data hubs indicators, and existing incentive systems. The conclusions of this document include a proposal of an incentive system to promote data sharing in the health research field.

Files

HealthyCloud Deliverable 4.3-final.pdf

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