Published June 14, 2023 | Version v1

Inter-rating reliability of the Swiss Easy-Read Integrated Palliative Care Outcome Scale for People with Dementia

  • 1. HES-So, Institute of applied health research Fribourg

Description

# Brief project overview
This is Data coming out of the IPOS-Dem project, a Stepped-wedge Cluster Randomised Trial (SW-CRT). Please make shure to check out the SW-CRT protocol for more details at https://www.doi.org/10.1111/jan.14953. A detailed description of the reliability study published based on this data is availiable at https://www.doi.org/10.1371/journal.pone.0286557.  

We are currently working on our main study (SW-CRT) analysis. While we remain dedicated to open science, our priority is to ensure the utmost integrity of our ongoing research.
I am pleased to inform you that we anticipate the final trial results to be published by Fall-Winter of 2023. Upon completion, our anonymized full dataset will be made accessible at https://doi.org/10.5281/zenodo.4008427. Interested parties seeking early access are encouraged to reach out to the first author directly. Furthermore, we are committed to enhancing the transparency and reproducibility of our research, and as such, we will provide the code for the full analysis at https://doi.org/10.5281/zenodo.4008429.

# Contributors
Frank Spichiger, Andrea Koppitz, Thomas Volken, André Meichtry

## Repository overview

|-- readme.md
|-- documentation
    |--readme.md
    |--IPOS-Dem-Reliability_data-dictionary.html
    |--IPOS-Dem-Reliability_sociodemographics_data-dictionary.html

|-- data
     |-- readme.md
    |--data.csv
    |--sd_overall.csv
|-- analysis
    |--readme.md
    |--scripts
        |--MainAnalysis.rmd
        |--S1_ClusterwiseSDs.rmd
        |--S2_Item_Characteristics.rmd


# Applicable instructions
The R markdown files were generated using R 4.2.2 in RStudio 2023.06.0 for MacOS X you can run them using free software but will need to install R, Rstudio and the packages introduced at the beginning of the files we used.

# Additional resources
- Main study protocol: https://www.doi.org/10.1111/jan.14953
- IPOS-Dem translation and adaption: https://www.doi.org/10.1186/s41687-022-00420-7
- Pos-Pal consortium with more information on the measure: https://www.pos-pal.org

Notes

The study was approved by the Research Ethics Committee of the canton of Zurich, Switzerland (BASEC-ID: 2019-01847) and is conducted in line with the principles put down in the Helsinki Declaration (29). The overarching trial is registered with DRKS00022339. All participants and/or their respective attorneys signed written informed consent for participation and publication. All raters have signed written informed consent for participation and publication.

Files

IPOS-Dem_T0_reliability-part.zip

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Additional details

Related works

Is cited by
Journal article: https://www.doi.org/10.1371/journal.pone.0286557 (URL)
Is supplemented by
Journal article: https://www.doi.org/10.1186/s41687-022-00420-7 (URL)
References
Journal article: https://www.doi.org/10.1111/jan.14953 (URL)