Published June 10, 2023 | Version v1
Dataset Open

Validation of Polish-language questionnaires for assessing the quality of life of patients with Primary Ciliary Dyskinesia (PCD-QOL)

Creators

  • 1. Department of Pneumonology, Pediatric Allergology and Clinical Immunology, Poznan University of Medical Sciences
  • 2. Laboratory of Molecular and Cell Biology, Poznan University of Medical Sciences
  • 3. Department of Molecular and Clinical Genetics, Institute of Human Genetics, Polish Academy of Sciences, Poznan, Poland
  • 4. Department of Computer Sciences and Statistics, Poznan University of Medical Sciences, Poland
  • 5. Primary Ciliary Dyskinesia Centre, NIHR Southampton Respiratory Biomedical Research Unit, University of Southampton and University Hospital, Southampton NHS Foundation Trust, Southampton, UK
  • 6. Clinic of Pulmonary Diseases, The Children's Memorial Health Institute, Warsaw, Poland
  • 7. Department of Pulmonology, Allergology and Respiratory Oncology, Poznan University of Medical Sciences, Poland
  • 8. Department of Pediatrics and Cystic Fibrosis, Polanki Children's Hospital, Gdansk, Poland
  • 9. Department of Pediatrics, Allergology and Immunology, Polanki Children's Hospital, Gdansk, Poland
  • 10. Department of Pneumology and Cystic Fibrosis, Institute of Tuberculosis and Lung Diseases, Rabka-Zdrój, Poland

Description

In recent years, questionnaires were published in English to assess the quality of life of patients with PCD for adults, adolescents aged 13-17, and children aged 6-12 and their caregivers. The aim of this study was to prepare a Polish version of the questionnaires and validate them in specific age groups with the participation of Polish patients with PCD.

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