Development and validation of the parents' healthcare needs scale for adolescents with congenital heart disease.
- 1. Department of Public Health, Experimental and Forensic Medicine, Section of Hygiene, University of Pavia, Pavia, Italy.
- 2. Health Professions Research and Development Unit, IRCCS Policlinico San Donato, San Donato Milanese, Italy.
- 3. EngageMinds HUB - Consumer, Food & Health Engagement Research Center, Università Cattolica del Sacro Cuore, Milano and Cremona, Italy.
- 4. Nursing Degree Course, University of Pavia, Section Istituti Clinici di Pavia e Vigevano S.p.A., Pavia, Italy.
- 5. ACHD Unit, Department of Pediatric and Adult Congenital Disease, IRCCS Policlinico San Donato, San Donato Milanese, Italy; Vita Salute San Raffaele University, Milan, Italy.
- 6. Health Professions Research and Development Unit, IRCCS Policlinico San Donato, San Donato Milanese, Italy; Department of Biomedical Sciences for Health, University of Milan, Milan, Italy. Electronic address: Rosario.caruso@grupposandonato.it.
Description
Dellafiore F, Arrigoni C, Flocco SF, Barello S, Pagliara F, Bascape B, Nania T, Baroni I, Russo S, Vangone I, Conte G, Magon A, Chessa M, Caruso R. Development and validation of the parents' healthcare needs scale for adolescents with congenital heart disease. J Pediatr Nurs. 2022 Dec 16:S0882-5963(22)00321-9. doi: 10.1016/j.pedn.2022.12.006. Epub ahead of print. PMID: 36529596.
Abstract
Purpose: The healthcare needs of parents of adolescents with congenital heart disease (CHD) have been under-investigated as no valid and reliable tools have been developed for assessing their needs. Therefore, this study aims to develop and validate the Parents' Healthcare Needs Scale for adolescents with CHD (PHNS-CHD).
Design and methods: A multi-method approach and multi-phase design were employed. Phase one referred to generating scale items based on emerging themes in the literature, and phase two showed the validation process, divided into three steps. Step one tested the content and face validity of the first version of the PHNS-CHD. After that, step two described the initial psychometric validation process of scale using an exploratory factorial analysis (EFA). Then, step three confirmed the PHNS-CHD factorial structure and assessed its internal consistency.
Results: The PHNS-CHD showed evidence of face and content validity, adequate construct, and internal consistency and stability. Specifically, it had 22 items grouped into five domains, labeled as follows: Healthcare education to the child; to be supported as a parent, clinical support to the child, the continuum of care to the child; emotional support to the child.
Conclusions: The PHNS-CHD is a psychometrically robust measure for assessing the healthcare needs of parents of adolescents with CHD.
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