Project milestone Open Access

Consent Modules for Data Sharing via the German Human Genome-Phenome Archive (GHGA)

Bruns, Andreas; Benet-Pages, Anna; Eufinger, Jan; Graessner, Holm; Kohlbacher, Oliver; Molnár-Gábor, Fruzsina; Parker, Simon; Schickhardt, Christoph; Stegle, Oliver; Winkler, Eva

The German Human Genome-Phenome Archive (GHGA) is a research consortium which is currently establishing a federated data infrastructure allowing the secure storage of and controlled access to omics and related health data consented for scientific research use. This whitepaper contains guidance for Data Submitters on how to update their consent forms such that data may be shared via GHGA for secondary research use.

Funding: The GHGA consortium is funded by the German Research Foundation (DFG) within the framework of the National Research Data Infrastructure (NFDI).
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